Dec 23, 2022
As we wrap up a year, one of my favorite guests is back for a visit. Daniel Defabio is back on the show to catch up and tell us about his newest project - a “late night style” show for those who are part of our medically complex, disabled community.
Additionally, I realized that I did not explain the changed that...
Dec 16, 2022
We are not sponsored by Starbucks but we would be thrilled if they were interested in partnering with two exhausted medical, rare disease mamas who trive on peppermint mochas and survive on caffiene. Suz and Brittany bond over coffee during this 4AM bonus content.
Links and resources:
Dec 14, 2022
Every one of us is special. Every one of us needs connection. When we connect with people who are “like us,” how do we find connection in rarity? Where do we go for support when we are one of a very few who share a similar story?
Today, I have the pleasure of introducing you to Brittany. Brittany’s daughter...
Dec 1, 2022
Hey mama. Motherhood is really really hard. Medical motherhood, foster motherhood, adoptive motherhood…motherhood in all of its many forms is hard. Regardless, every journey to motherhood is unique, and yet so very similar. What do medical motherhood and foster/adoptive motherhood have in common? We’re so glad you...
Nov 23, 2022
We know that it is scary to learn that your child(ren) may need extra pieces of medical equipment to survive. Medical technology should never be positioned to us as a “last resort” when in reality it is often life saving game changers for our kids.
Tia is here, sharing her family’s story. I met Tia and Hendrix...